November 6, 2019

I am sharing my favorite way to approach splits with you!  This is a hatha class that kindly guides you away from your comfort zone towards hanumanasana. My approach is gentle and the focus is on being patient and accepting what is changing.   Props needed: two yoga bl...

February 11, 2019

In the early stages of Stargardt’s Disease, there is a lot of fear.  We don’t know how the vision loss will progress or how it will effect our livelihood.  Change is most often accompanied by fear.  If you or a loved one was recently diagnosed with Stargardt’s, you may...

January 9, 2019

Think of the way you feel when you find a song that you really like (like REALLY like)!  If it's a true match, you might start searching for more songs that make you feel a similar way. 

I thought it’d be awesome to share some of those songs that I really enjoy and...

February 28, 2018

This post is a real treat!

It was such an honor to be a part of the Bronx Narratives Radio podcast highlighting Bronx culture, people, and tunes!!  We had a great time!  Click to Listen in!

What you’ll hear:

  • Updates from your hosts Kayla and Dondre

  • Dope...

February 13, 2018

i understand why there i confusion around our one word "love" since our language forces us to use it in every way with its 100 unspecified denotations. So has English limited our communication of love?

February 21, 2017

As promised, here is the second part of “Real Chat” about my low vision appointments and the white cane!  Despite the feelings of anxiety discussed in the moments before, I ended up having a really nice day!  In any situation, I would try not to say there is no reason...

February 9, 2017

Yay vlog!!! I’m calling these next couple of videos “Real Chat” because I want to be a raw resource for those of you on a similar vision loss journey.  Yep, I said “next couple”.  That means there’s a Real Chat coming up about the moments after the white cane!  It’s im...

January 7, 2017

Say what?! Great news!!! 

Acucela Receives Orphan Drug Designation from the FDA for the Treatment of Stargardt's Disease!

Prior to my research, I did not know what an orphan drug designation was.  Here's my current understanding:  Basically, it is a tax exemption for re...

December 18, 2016

With every person that I meet, I want them to leave understanding that there is always a silver lining in any situation in life!

Last week I had the honor of working with Vixen J. to contribute my story to his wonderful and inspiring online series!  Similar to Humans of...

December 9, 2016

I have been in observation of myself and what is true about my feelings and experiences throughout this journey with Stargardt's disease.  Over the past two years I have written down statements (as they genuinely come to mind) about my experiences living with Stargardt...

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Dear Society: You Can Be "Blind" and Still Use a Phone

March 13, 2019

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